Comments on Everyday Adventures: Still here... and an update

Wow, this sounds so hard and complicated. I will ...

2009-11-11T19:36:28.522-05:00

Wow, this sounds so hard and complicated. I will definitely start praying for you guys! It is so hard, especially when they can't really explain how they are feeling. And it sounds like what he is feeling is pretty complicated and hard for him to identify, which does sound a bit like hormones and puberty. I know I felt that way often (and still do sometimes when I am PMSing).

My only piece of advice it pray. That has been something that has helped us the most when things have gone crazy with Danny. Otherwise, hopefully your doctor will be able to help.

Oh, one idea: perhaps you could keep a journal and try to see any patterns with foods, or other triggers. I know that is probably the last thing you have time for, but it could help. Good luck!

Julie's comment made me think of something - the l...

2009-11-11T07:59:54.466-05:00

Julie's comment made me think of something - the literal interpretation of language. Very worth exploring as a source for him being upset.

Last night I read a post by John Elder Robison - if you have not read his blog before, it might interest you. He is an adult with Asperber's S.

Thinking of you. Barbara

Oh, Danette. I don't really know of anything helpf...

2009-11-10T09:01:47.657-05:00

Oh, Danette. I don't really know of anything helpful to say. You will all be in my prayers and I hope you find some answers soon. ((HUGS))

On a sort of side note, I've noticed that Daniel takes some movies and things too literally. Some illustrations in books or parts of movies that are supposed to be ridiculous and funny are more dangerous for him to see and try to imitate and he doesn't understand that. Seemingly innocent things are being added to our "banned" list because of that...

Our prayers are with him. I hope that everything w...

2009-11-09T20:09:00.571-05:00

Our prayers are with him. I hope that everything will be okay soon. I know it will be. Just hang in there.

Specifically added to my prayerlist. You and dh...

2009-11-09T14:58:51.705-05:00

Specifically added to my prayerlist.

You and dh are stalwart in managing the bad days. You might feel a little better if you set a short term expectation that the ups/downs will remain for one more week. A 'batten down the hatches' attitude for one week could help you feel less helpless. More and tighter structure helps rule-out reasons for his behavior. (Reducing the questions you ask yourselves.)

An assessment by a physician is a next best resort to solving his current issue. Can you change the appt from joint to just for BH (resched for CH later)?

Believing that prayer and having a plan help - that's what I offer.
Barbara

OMG Hugs darling I can just feel the stress in you...

2009-11-09T08:06:21.734-05:00

OMG Hugs darling I can just feel the stress in your post
Many many many hugs
I am saying a big prayer for Bear hug and hope peace and serenity wraps him up in a big bearhug
So so so sorry - its the worst seeing our kiddos in pain
When R gets stimmy I feel I will just die from feeling bad about it
And its also tougher in some ways when they are grown up
a 3 year old having sulks or a meltdown is one thing and even if its the exact same thing it looks different in a 6 or 7 year old
xoxoxoxoxoxo